Can you tell me what is dystonia? I have
been diagnosed with this disorder and am 33 years old.
Dystonia is a very rare disorder where you
have muscle contractions or repetitive or twisting movements. This often occurs
in the neck, eyes lids, hands but can affect any part of the body. The
condition can be disabling and affect the quality of life. Unfortunately,
dystonia can be difficult to treat. There are several medication used to
relieve the muscle movement, but often they do not work. In addition, the meds
have numerous unpleasant side effects. Botox has been tried and does work.
However, the benefits of Botox are short lived (3-6 weeks) and you need repeat
injections, which adds to the cost.
There is no curative surgery for dystonia
but recently some surgeons have been implanting electrodes in the brain to stop
the nerve signals and inhibit dystonia. The surgery is experimental, expensive
and has many complications. Try Botox and if it works, you will have temporary relief.
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